DH is on antibiotics again. His symptoms are lack of appetite, sleepiness, lack of energy and a horrible temper. He is still on 1 Namenda per day. I don't know what to do! He is showing the same symptoms from January, 2008. If it is just the staph infection, we can deal with it. If it is something more I don't know how much strength I have left.
Please keep praying for all dementia patients and their extended family and friends. We really need it!
Tuesday, September 22, 2009
Tuesday, August 18, 2009
Maybe it's not dementia
Over and over DH says he does not have dementia.
The neurologist said to take him to 1/2 the dose of Namenda. Since the change there has been no change in his memory. No more and no less.
DH saw his psychologist last week. I was present. The doctor gave DH the standard 30 question test for dementia. He passed 28 out of 30. He had the wrong month and couldn't remember the third item in a list of words. I passed 29 out of 30. I couldn't remember the third item in a list of words. The psychologist strongly feels that the staff infection was messing with DH brain and cause symptoms that everyone took to be dementia.
We go back to the neurologist in three months (sometime in October) and then we will see if he is willing to stop the Namenda entirely.
It is a waiting game, but the results could be fantastic. I refuse to get my hopes up. It is very hard not to.
Please keep praying for all dementia patients, their extended families and friends and their caregivers. You have no idea how these prayers help.
The neurologist said to take him to 1/2 the dose of Namenda. Since the change there has been no change in his memory. No more and no less.
DH saw his psychologist last week. I was present. The doctor gave DH the standard 30 question test for dementia. He passed 28 out of 30. He had the wrong month and couldn't remember the third item in a list of words. I passed 29 out of 30. I couldn't remember the third item in a list of words. The psychologist strongly feels that the staff infection was messing with DH brain and cause symptoms that everyone took to be dementia.
We go back to the neurologist in three months (sometime in October) and then we will see if he is willing to stop the Namenda entirely.
It is a waiting game, but the results could be fantastic. I refuse to get my hopes up. It is very hard not to.
Please keep praying for all dementia patients, their extended families and friends and their caregivers. You have no idea how these prayers help.
Tuesday, August 4, 2009
After Doctor's Visit
We visited DH neurologist and he said to cut the Namenda back to once a day. I did pills Sunday and cut the Namenda to morning only. Only time will tell if this makes a difference or not. I will have to be most observant of behaviours.
Otherwise everything is status quo. No real changes other than DH trying to force me to do things that are not budget wise and me saying no. If you are a yes person then you know exactly how I feel. Saying no to someone you love is heart breaking.
Please keep praying. We all need your prayers.
Otherwise everything is status quo. No real changes other than DH trying to force me to do things that are not budget wise and me saying no. If you are a yes person then you know exactly how I feel. Saying no to someone you love is heart breaking.
Please keep praying. We all need your prayers.
Tuesday, July 14, 2009
Update
DH had a very bad time with post surgical pain last night. I have never seen him deal with so much pain.
Today he had an appointment with the nurse practitioner that works for our primary care physician. The outcome was that DH has to return to psychological therapy. Right now I am waiting for the therapist to call back and say she will see him after such a long absence. I expressed the urgency. I hope she really understands it.
This morning DH thanked me for helping him through the pain episode. That was a first. He usually doesn't say thank you for anything. He was brought up to know what things he is supposed to do and not to expect any (and I do mean ANY) recognition for what he has done. What a miserable childhood!
I am doing better. No more wanting to run away, but the idea is still tempting.
Please continue to pray for all dementia patients, their caregivers, family and friends.
Today he had an appointment with the nurse practitioner that works for our primary care physician. The outcome was that DH has to return to psychological therapy. Right now I am waiting for the therapist to call back and say she will see him after such a long absence. I expressed the urgency. I hope she really understands it.
This morning DH thanked me for helping him through the pain episode. That was a first. He usually doesn't say thank you for anything. He was brought up to know what things he is supposed to do and not to expect any (and I do mean ANY) recognition for what he has done. What a miserable childhood!
I am doing better. No more wanting to run away, but the idea is still tempting.
Please continue to pray for all dementia patients, their caregivers, family and friends.
Saturday, July 11, 2009
Is DH loosing his mind or just lying?
DH has been impossible this morning. He claims that he asked twice yesterday evening to drive the Mercury to a sleep study appointment. Initially I had planned to do some shopping while he was "sleeping", but decided to do something else instead. I do not remember him asking for the car at all.
Is he delusional? Is he lying? I don't know, but the day started off with a bang when he got home and started yelling.
I am at work now. I want to run away from home. I don't want to do this any more. I want a day of peace and quiet where I can do the things that need to be done without him constantly yelling, nagging or making disparaging comments.
How am I supposed to hold down a full time job and do things around the house with this kind of atmosphere? I have my own health problems and when they flare up is the time DH always acts the worse. It is like he has to have the attention while I am the one who needs the peace. I wish my mother was still alive. I could cry on her shoulder for hours right now.
Have you ever wanted to do something but you didn't have the proper tools for the project? Last night I wanted to paint the inside of the hall closet. I am in the process of changing it from a clothes closet to a pantry. I found the paint. I had old newspapers to cover the floor. All I could find was a 1" paint brush. Do you have any idea how long it takes to paint the three walls of a 36X24 closet? I was at the task for almost three hours. The wallboard had never been painted since the house was built and soaked up so much paint that you could hear it sighing with relief. This morning it looks good. But to have the pleasure of a task done well was taken from me by a man who only cares about his self and it is destroying me.
I have no support group; no friends who care about me and the rest of my family is totally in denial. Now where do I go?
Please pray for me. I really need it bad. Thank you, K
Is he delusional? Is he lying? I don't know, but the day started off with a bang when he got home and started yelling.
I am at work now. I want to run away from home. I don't want to do this any more. I want a day of peace and quiet where I can do the things that need to be done without him constantly yelling, nagging or making disparaging comments.
How am I supposed to hold down a full time job and do things around the house with this kind of atmosphere? I have my own health problems and when they flare up is the time DH always acts the worse. It is like he has to have the attention while I am the one who needs the peace. I wish my mother was still alive. I could cry on her shoulder for hours right now.
Have you ever wanted to do something but you didn't have the proper tools for the project? Last night I wanted to paint the inside of the hall closet. I am in the process of changing it from a clothes closet to a pantry. I found the paint. I had old newspapers to cover the floor. All I could find was a 1" paint brush. Do you have any idea how long it takes to paint the three walls of a 36X24 closet? I was at the task for almost three hours. The wallboard had never been painted since the house was built and soaked up so much paint that you could hear it sighing with relief. This morning it looks good. But to have the pleasure of a task done well was taken from me by a man who only cares about his self and it is destroying me.
I have no support group; no friends who care about me and the rest of my family is totally in denial. Now where do I go?
Please pray for me. I really need it bad. Thank you, K
Thursday, July 2, 2009
Toilet Update
I got home from work last night so tired that I couldn't keep my eyes open.
The toilet water had dropped down to a good level. By gravity? DH says that he did not dip out any water. However, the container that we have used in the past was next to the toiled. Strange how things happen but DH denies them.
Now to a three day weekend. Hope that I can control my temper and get some things done around the house.
Please keep praying.
The toilet water had dropped down to a good level. By gravity? DH says that he did not dip out any water. However, the container that we have used in the past was next to the toiled. Strange how things happen but DH denies them.
Now to a three day weekend. Hope that I can control my temper and get some things done around the house.
Please keep praying.
Wednesday, July 1, 2009
Bleach
We have a clogged toilet. Not an exciting piece of news. I have been trying to fix it with a plumber's snake and plunger. Last night I started working on it again and surprise it had some type of bleach product in it. DH claims that he didn't put anything in the toilet. Well, I don't believe him.
Tonight I will try to dip out all of the fluid and start over with gloves on. If this doesn't work I will have to call the plumber again. How much fun.
We have an appointment coming up with the dementia doctor. This will be on my list of things to talk about. DH still claims that he does not have dementia. I am going to suggest that he stop taking the Namenda. We will see what the doctor has to say about this.
Keep praying for all of us. We need it!
Tonight I will try to dip out all of the fluid and start over with gloves on. If this doesn't work I will have to call the plumber again. How much fun.
We have an appointment coming up with the dementia doctor. This will be on my list of things to talk about. DH still claims that he does not have dementia. I am going to suggest that he stop taking the Namenda. We will see what the doctor has to say about this.
Keep praying for all of us. We need it!
Subscribe to:
Posts (Atom)